I’m writing a book titled Madelung’s Disease (Multiple Symmetric Lipomatosis): A Resource for Patients, Practitioners, and Caregivers.
The book includes the following topics:
- Understanding Madelung’s disease
- History, symptoms, diagnosis, treatment
- Demographics
- Highlights from research studies
- Voices and journeys: interviews with patients, medical providers, and experts
- Management strategies
- Ongoing Research
- Support systems
- Advocacy
If you are a patient, caregiver, or expert and would like to be interviewed about your experience, please contact me.